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FAQs

What happens if I don’t want to take part?
It is completely up to you whether or not you would like to participate. If you decide not to take part in the study, the standard of care you receive will not be affected in any way. You can also withdraw at any time if you change your mind about taking part after signing the consent form. If you have any questions or concerns, please ask the research nurse or contact the research department.
What happens if I change my mind after consenting to take part in research?
If you consent to a study and decide later that you no longer want to take part, you are still free to withdraw (come out of the study) at any time and you do not need to give a reason. If you decide to withdraw, the standard of care you receive will not be affected in any way and you will continue in the normal pathway. If you have any questions or concerns, please ask the research nurse or contact the research department.
What happens to my data and who can see it?
All information collected during a research study is kept strictly confidential, with only necessary individuals having access to your data. When you are approached about taking part in a research study you will be given a study specific participant information sheet which will explain who has access to your data. If you have any further questions or concerns regarding this, please ask the research nurse who will be consenting you if you decide to take part.
How will GDPR affect me?
The research team at the Royal Orthopaedic Hospital will be using information from you and/or your medical records in order to undertake the studies and acts as the data controller. This means that we are responsible for looking after your information and using it properly. The Royal Orthopaedic Hospital NHS Foundation Trust will keep identifiable information about you for 15 years after the study has finished.
Your right to access, change or move your information is limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

The Royal Orthopaedic Hospital NHS Foundation Trust will use your name, NHS number and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from The Royal Orthopaedic Hospital NHS Foundation Trust and regulatory organisations may look at your medical and research records to check the accuracy of the research study. The only people in The Royal Orthopaedic Hospital NHS Foundation Trust who will have access to research information that identifies you will be people who need to contact you regarding the study you are participating in, or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number or contact details, unless you consent to this when deciding whether to take part in the study. You can find out more about how we use your information here. (www.hra.nhs.uk)
Who can I speak to if I have concerns?
Information about the study specific team will be provided on the participant information form. Alternatively, you can contact the research team on This email address is being protected from spambots. You need JavaScript enabled to view it. or 0121 685 4316. If you wish to seek some independent advice, please contact the local Patient Advise Liaison Service (PALS) on This email address is being protected from spambots. You need JavaScript enabled to view it. or 0121 685 4128.